Trump Administration's Research Cuts Threaten ALS Cure for Genetic Mutation Carriers
• A person with a genetic mutation linked to ALS warns that the second Trump administration's funding cuts have halted key research, including at Mass General and the ALLFTD project for FTD. • Cuts defunded ALS studies at Harvard and other universities, pausing longitudinal research and denying symptomatic patients access to trials like baricitinib at MGH. • Health Secretary Robert F. Kennedy Jr.'s policies are linked to rising measles cases, potentially overburdening diagnostics and delaying ALS treatments that take a decade to reach patients.
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